On Tuesday I went to see Elton John! A friend of my sister got 8 tickets so it was her, 4 of her friends, my mom, my roommate and me. My roommate and I went down to Lethbridge in the afternoon and then we went out for dinner. The concert was at 8. It was all him, no one opened up for him. He played for 2 and a half hours right on the piano. We sat on the top right so it was very good seats but the seats were close together and there was no leg space. He put on a excellent show! And then Laura and I drove home after the show. The show was over at 10:30 and we got out there and stopped at McDonalds for a drink. It was a big mistake doing the drive through. Big mistake! It took 45 min before we ordered! And even longer for our food and to eat. So we got on the road at 11:45 and got home at 2. It was a wonderful night.
Monday, April 30, 2012
After doing the blog on Dr. Phil, I found a video about this young lady who has a disability and she is a twin too.
She finally talked to her family through a typing on a computer. Her life was difficult for her and her family. Check out this video about her:
When I watched the video it hit very close to home and it got me thinking about my life. In a way it was like watching myself in the video. This girl who never talked to her family and at age 13 she talked with help a computer. She wrote a book on having a disability and has a blog.
People who have disabilities, we have goals and dreams like everyone else.
Wednesday, April 18, 2012
Hey does anyone watch Dr. Phil? Sometimes I watch him. I watched Dr. Phil on Friday; it was about a mother who has two grown children with disabilities. The two children are in their 40’s and they have a disorder called Sanfilippo syndrome. It is a genetic disorder but doesn't show up until you're a few years old.
They live in an institution and their mother doesn’t see them often. She says that when she goes to visit her children, she believes that they do not know she’s there. She has no way to communicate with her children and for them to share what feelings they have.
So she goes to visit them every 2 months and she wants the right to euthanize her severely disabled children. They require feeding tubes to eat and the mother believes that this is the only thing keeping them alive. There was another mother on the show who has a special needs child. This mother says that euthanizing people is taking their lives away from them.
Here are my thoughts on the subject. It is hard topic to think about because I live with disability. I know what it is like to live with a disability. Sometimes I wish I didn’t have a disability but my disability isn’t as bad as other people.
If I had a severe form of a disability and if I had no idea about what is going on around me, then yes I hope my parents would do the right thing by my family and me.
In that case, if my parents wanted to put me in an institution, that would be okay with me. It probably wouldn’t make a difference to me. But, I know in my heart that when my family comes to visit, I will sense their presence. But I don't know if I want to live like a vegetable and have no quality of life. It would be up to my parents to keep me alive or not. If something happened to me and I lost my quality of life, I would want my parents to let me go. I know my family loves me and would want to do the right thing for me.
I understand the pain of what she is going through and I get what she is dealing with and I hope people understand that it’s not easy for her. She needs to do the right thing for her and her family and people should not judge. At the same time, just because someone has a disability, it doesn’t mean they don’t have a good quality of life. It all depends on the person and the disability.
Wednesday, April 11, 2012
I hope everyone had a wonderful Easter with your family. I had a wonderful time with my sister and her family and my mom. In Airdrie the city held an Easter egg hunt for everybody so we went to that. They had it for all ages, from babies to teenagers. They split it into 4 hunts so kids were all about the same age. They had a lot of stuff going on like face painting and a pancake breakfast. It was so much fun and I got to see people from school and that was great. It was so nice to see people that I went to school with, catching up on who’s married and has a family and how much their kids have grown. My sister made Easter dinner and it was a wonderful supper. This was my best Easter that I spent with my mom and my sister and her family.