Today I was speaking with a woman who has been
living with a disability and trying to get out of a troubling situation. The
woman was having difficulties expressing her independence around
her family; specifically, she had been fighting with her family for years
about who would support her and under what conditions. Her story was hard to
hear, especially the parts where she would be stuck with an abusive support
worker, not be believed by her loved ones, and be denied a say in her own
support. Fighting tears, the woman said she felt she had nobody to talk to about
her situation and very little hope for the next support worker.
This experience is just one example of a common
problem for people with disabilities. In my own experience, I have found it
very obvious when a support worker is working with me to receive a pay cheque,
or when they sincerely care about the people that they work with. There is an
alarming lack of quality support when people hire support workers who are
merely working to clock in their hours; these people come in (rarely on time)
and work the required hours, but spend little time getting to know who you
truly are and what you care about. Additionally, they may be more inclined to
do what they want to do, such as leaving to run their own errands for hours or
making the person join them against their will. Quality support is important
because it can lead to abusive or harmful situations for people who don't have
100% autonomy or say in their lives.
Instead, quality support first involves a support
worker working for people with disabilities because they truly care about the
people whom they work with. When this is present, support workers will go out
of their way to get to know the person beyond their disability. They are
supports, friends, family, and generally people who you can turn to whenever
you need to. These people will go out of their way to make sure your goals and
interests come before anything else. We definitely need more people like this
in the social services sector to ensure people with disabilities are being
advocated for and not oppressed.
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